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5 yr transplantiversary update

Dear Donors Where do I begin?  What do I say? What do I do? I remember when when Nadia’s medical team talked about the timeline leading up to transplant then the timeline for post transplant. There were all of these … Continue reading

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Four year transplantiversary!

9 platelet transfusions, 13 red blood cell transfusions, 50 mls of cord blood has given us, 4 years= 1,460 days =35,040 hours =2,102,400 minutes =126, 144,000 seconds = 147,168,000 heartbeats more with Nadia #thankyoudonors Take those numbers in, breathe them … Continue reading

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Two year transplantiversary

TWO years post-transplant. We have made another milestone in the post BMT world. Can I get a whoop whoop?!?!? TWO years post-transplant!  I have been saying this quietly to myself for the last month, I feel like if I say … Continue reading

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Some wee stitches wrap up May

Well after the events of the last blog update we had a bit of excitement with Nadia. We decided at the last minute we would head to Calgary for visit for the last weekend of May. We hadn’t been back … Continue reading

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Trucking along and a side of Genetics – May 21, 2015

May 21 update (published a month later…) Things have been busy, with what, I can’t really say, but perhaps just ‘normal’ life? Do I dare say that out loud? We as a family have been doing great. Since our last … Continue reading

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Year +1: Happy transplantiversary!

It has been 1 year since we got to hit the restart button and we are so grateful to everyone that has been supportive to us on Nadia’s Quest. Nadia has been doing really well: running, jumping, and playing like … Continue reading

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Reflection, Resolutions, and Realizations

As many of you know Nadia was born premature by 6 weeks, spent 2 weeks at BC Children’s hospital NICU and another 3 weeks in the Kelowna NICU.  To the right is a picture of Nadia the day she was … Continue reading

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Day 233 – A thankful Thanksgiving

We spent Thanksgiving weekend in Calgary and Nadia got to play with a gaggle of cousins, and had an early Birthday party. Being able to do this trip really marks a milestone towards normalcy. This is the first time in … Continue reading

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Day +177: Anniversaries, new normals and temper tantrums

Well it has been a year since we were told by our Pediatrician to pack up and immediately drive to BC Children’s hospital 4 hours away.  The only thing I remember him saying was “there are no abnormal cells in … Continue reading

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Day +137: Goodbye CSA, Hello a bit of freedom

This morning I gave Nadia her last dose of her immuno suppressant (cyclosporin or CSA). There are no words to describe the feeling I have.  We are still to take her oral Magnesium for a few weeks more and still … Continue reading

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