We were at Children’s this week. We met the blood doctors, lung doctors, eye doctors, and dentists. Nadia got a clean bill from the specialists.
We got an update regarding the bone marrow stem cell transplant. They have a partial cord blood match (5 out of 6 markers match with a mismatch on the A for those who know what that means). They have put a hold on the cord blood and they are starting the process of checking Nadia’s first cousins for the remote possibility that their bone marrow is a better match.
Nadia’s blood counts are trending down, and she is getting close to the point where she will be requiring regular transfusions. They are planning on proceeding with the transplant in early January. So the countdown begins.
We did get some good news from Genetics though. Tara and I are not carriers, so none of our siblings, or their children, will be getting DC. This is really good news.
This means Nadia’s genetic problem either started spontaneously with her, or there could be a problem with my or Tara’s reproductive tissues. This means there is about a 5 % chance of any future children also having DC without some sort of intervention. Something we will think about later.
On a lighter note, there is no computer safe from Nadia’s mad hax0r skillz. 😉
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