Day +1: Beginning life post transplant

Well today was pretty uneventful and kinda boring (something we want everyday to look like from here on in).  Thor got to spend the night at the hospital and mommy got to sleep diagnally in a queen sized bed at the condo! YESSS. Vancouver got hit with some major snow fall on the weekend and monday, so every thing was really melting with the the sun shinning today. It was beautiful, puts a little skip in your step when the weather is like this. Nadia had a good day she got some platelets today.

Nothing to report really, it is a waiting game from here on in. Everyday they will take blood from Nadia to see what all her levels are at. It will take weeks for us to see any results. So basically, the Jeopardy theme song is constantly playing in the background. Her appetite still isn’t great. So far no signs of mouth sores, but she did keep pointing to her one side of her mouth today, we had a good look and saw nothing. which is a relief, but also a fine balance.

Kids by this stage of transplant usually have mouth sores and a feeding tube, but because Nadia has only had 10 days of a reduced intensity chemo, they hope not to see any sores. They can’t wait too long to insert a feeding tube if her sores become too much, as it will be too painful to insert for her, also because she has slowed with her eating they want to make sure she is getting enough calories. We would prefer her not to have one, as it will just be one more line to deal with and stress over, but if she needs it she needs it. So we will talk with the doctor tomorrow about it and have them have a look at her mouth. It is hard to feed a 2 yr old at the best of times, Nadia ALWAYS eats better when we eat with her, and that isn’t possible in the isolation room, and lets face it, hospital food is crap.

Other than that it has been boring and uneventful, and we would like to keep it that way.

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We will be posting Nadia’s counts every day, and we will describe what all the numbers mean in a future post, once we get a clearer idea from our doctors.

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If you are not on facebook, you should read Tara’s very moving post on Nadia’s transplant from a mom’s perspective.

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The awesome calendar poster our wonderful nurses made to track Nadia’s blood count progress.

This morning’s numbers, along with an indication that Nadia received platelets today (Thank You Donors!). So we expect the platelets (PLT) to be up for sure tomorrow.