Nadia’s quest blog
- 5 yr transplantiversary update
- Four year transplantiversary!
- Two year transplantiversary
- Some wee stitches wrap up May
- Trucking along and a side of Genetics – May 21, 2015
- Year +1: Happy transplantiversary!
- Reflection, Resolutions, and Realizations
- Day 233 – A thankful Thanksgiving
- Day +177: Anniversaries, new normals and temper tantrums
- Day +137: Goodbye CSA, Hello a bit of freedom
Author Archives: Thor Bjarnason
Day +48: Discharged!
We were discharged on Friday. Even with Nadia’s counts dipping that day, they felt comfortable with the upward trend and Nadia’s overall health in general. I also have a feeling they needed the room for another little boy or girl … Continue reading
Posted in Uncategorized
Comments Off on Day +48: Discharged!
Day +44: Chimera test
Remember the Day 0 Post when we wrote that Nadia’s blood type would change? After successful transplant it will be the same type as the donor. But actually, it will not just be the same type, it will be the … Continue reading
Posted in Uncategorized
Comments Off on Day +44: Chimera test
Day +40: Graphs!
Some of you have been asking for graphs of Nadia’s counts (mostly the nerdy, sciencey types). I struggled for a while on how best to present them and have put up my first attempt on the Counts Graphs page. Nadia … Continue reading
Posted in Uncategorized
Comments Off on Day +40: Graphs!
Day +36: What do these numbers mean again?
Briefly, we want WBC and ANC to be above, and stay above 0.5. We went over this on Day +3, but I think it is worth reviewing now that we are seeing ANC counts. Today Nadia had WBC = 0.8 … Continue reading
Posted in Uncategorized
Comments Off on Day +36: What do these numbers mean again?
Day +26: Day in the life of BMT – Daily logistics, laundry limited
This is how life looks for mommy and daddy while Nadia is in isolation. We are on a 2 day repeating schedule. Let’s start by daddy waking up at the hospital. We wake up at about 8am every morning. There … Continue reading
Posted in Uncategorized
Comments Off on Day +26: Day in the life of BMT – Daily logistics, laundry limited
Day +24: Another ducky update
And on the ducky front – our friends in Victoria sent us 4 more duckys! Thanks Barretts!! All her ducks in a row < my preciousessess > Nadia overwhelmed with duckys
Posted in Uncategorized
Comments Off on Day +24: Another ducky update
Day +23: Day in the life of BMT – WBC = 0.1! | Laundry
Those who follow Nadia’s Quest on twitter and the facebook know that we crossed a milestone yesterday. They measured some white blood cells! Instead of measuring < 0.1 they measured 0.1 two days in a row. This is an indication … Continue reading
Posted in Uncategorized
Comments Off on Day +23: Day in the life of BMT – WBC = 0.1! | Laundry
Day +21: A ducky update
It is starting to look like Nadia is going longer between platelet (PLT) transfusions. Also, yesterday morning Nadia’s red blood cells (Hgb) went up (but went down a bit again today). These are all good signs that maybe her marrow … Continue reading
Posted in Uncategorized
4 Comments
Day +20: Day in the life of BMT – mealtime | Wrong about the bananas
Without an immune system, a food-borne illness is much easier to get, and much more dangerous for Nadia. So we have to be very careful regarding food and drink. This not only includes what she consumes and how, but also … Continue reading
Posted in Uncategorized
2 Comments
Day +17: Day in the life of BMT – bathtime
A 6 year old on the ward made Nadia a sign for her door. This little girl is so sweet! And so mature. The nurses say that it seems common for young patients on the ward, facing the daily grind … Continue reading
Posted in Uncategorized
7 Comments