Nadia’s quest blog
- 5 yr transplantiversary update
- Four year transplantiversary!
- Two year transplantiversary
- Some wee stitches wrap up May
- Trucking along and a side of Genetics – May 21, 2015
- Year +1: Happy transplantiversary!
- Reflection, Resolutions, and Realizations
- Day 233 – A thankful Thanksgiving
- Day +177: Anniversaries, new normals and temper tantrums
- Day +137: Goodbye CSA, Hello a bit of freedom
Category Archives: Uncategorized
Day +48: Discharged!
We were discharged on Friday. Even with Nadia’s counts dipping that day, they felt comfortable with the upward trend and Nadia’s overall health in general. I also have a feeling they needed the room for another little boy or girl … Continue reading
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Day +44: Chimera test
Remember the Day 0 Post when we wrote that Nadia’s blood type would change? After successful transplant it will be the same type as the donor. But actually, it will not just be the same type, it will be the … Continue reading
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Day +43: Crunch week, anxiety and dance dance revolution
Well the last few weeks have been an emotional roller coaster. I have discovered that my body does not react well to stress and anxiety. I had been so happy when Nadia finally registered on the WBC chart then reminded … Continue reading
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Day +40: Graphs!
Some of you have been asking for graphs of Nadia’s counts (mostly the nerdy, sciencey types). I struggled for a while on how best to present them and have put up my first attempt on the Counts Graphs page. Nadia … Continue reading
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Day +36: What do these numbers mean again?
Briefly, we want WBC and ANC to be above, and stay above 0.5. We went over this on Day +3, but I think it is worth reviewing now that we are seeing ANC counts. Today Nadia had WBC = 0.8 … Continue reading
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Day +32: Day in the life of BMT – Parents in the cancer ward
So thor and I take shifts staying at the hospital with the Nadster. one night on, one night off. Living at the hospital brings me back to Rez days in university. Where everyone is living in a small room, usually … Continue reading
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Day +28: Day in the life of BMT – Smoothie making – Hiya NG tube
Today Nadia received another platelet transfusion. Thank You Donors! == I started making smoothies for Nadia just after she was diagnosed. We knew she needed a BMT and I wanted a way to fatten her up before transplants as I … Continue reading
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Day +26: Day in the life of BMT – Daily logistics, laundry limited
This is how life looks for mommy and daddy while Nadia is in isolation. We are on a 2 day repeating schedule. Let’s start by daddy waking up at the hospital. We wake up at about 8am every morning. There … Continue reading
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Day +24: Another ducky update
And on the ducky front – our friends in Victoria sent us 4 more duckys! Thanks Barretts!! All her ducks in a row < my preciousessess > Nadia overwhelmed with duckys
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Day +23: Day in the life of BMT – WBC = 0.1! | Laundry
Those who follow Nadia’s Quest on twitter and the facebook know that we crossed a milestone yesterday. They measured some white blood cells! Instead of measuring < 0.1 they measured 0.1 two days in a row. This is an indication … Continue reading
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