We were discharged on Friday. Even with Nadia’s counts dipping that day, they felt comfortable with the upward trend and Nadia’s overall health in general. I also have a feeling they needed the room for another little boy or girl sicker than Nadia. We just have to be extra careful.
We will be going to the clinic twice a week to start, with our first appointment tomorrow. After each appointment we will be given the information for the next appointment. Assuming everything continues to go well, they will reduce our appointments to once a week, and then monthly, and then less frequently. I think they will let Nadia go back to Kelowna when we start monthly appointments. At these appointments they will take blood samples and determine if Nadia needs any adjustments to her medications, and will give her any blood or platelet transfusions if needed.
While it is great to be discharged from the hospital, we have been told to expect come back. Since Nadia’s immune system is so brittle, it is very likely, no matter how careful we are, that Nadia will catch something that will cause her to spike a temperature or get an infection. If this happens, we will be readmitted to the hospital for treatment. And that is OK. We want what is best for Nadia.
Going to or from the hospital requires Nadia to wear a mask. After we were given the discharge papers it took almost 15 mins to get the mask on Nadia, and then we rushed out as quickly as we could before she took the mask off.
It was really nice to eat supper as a family on Friday night, and Nadia even took a bite of steak! 🙂
Today the weather was beautiful in Vancouver and we went to a park by the beach. This was the first time Nadia has had sun on her face since we were admitted to hospital in mid Feb. She had lots of fun running around, looking at dogs and bunnies.
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What? I’m Free???
Freedom!
Running away
Nadia running away
Nadia running back
Photoroll right after mommy stopped filming
Playing ball with daddy
