Tara and Nadia did not get much sleep the night of admission. Nadia was given her red blood cell transfusion (Thank you Donors!!!) and they checked her vitals every hour.
Day -10 was hard. With lack of sleep, 10 hrs of chemo, official lock-up in the room, and a dose of steroids, little N was not herself. She wanted to leave. If you know N, you know she does not speak much, and we have been working hard to get her to say more. But she is a good communicator and we always reward her for getting her point across. Today we couldn’t. We knew what she wanted but could not let her have her way. How do you explain bone marrow transplant to a 2.5 year old? How do you tell them that you have to poison them with chemo drugs, bring them to the point of death, and then bring them back in order for them to live a longer life? Well, you can’t. At least, we can’t.
It was heartbreaking. Nadia wanted to leave. She even put Tara’s hand on her jacket and pointed to the door. :_(. Daddy was a mess.
Combine this frustration with sleep deprivation, chemo drugs, and steroids and Nadia was transformed into a little Hulk. She raged. And raged. And raged. She left a Nadia-shaped hole in the door as she broke way to freedom, grabbed a nurse and bashed him around with each step using only one hand as she stormed off the grounds. (obviously not true, but definitely going through her mind and within the realm of possibility given the laws of physics she understands from cartoons).
ROID RAGE
At the end of the day she had a bit of a reaction to these chemo drugs, and is being watched closely.
Last night they only checked her vitals twice. Mommy and Nadia had a much needed rest, and Bruce Banner greeted us this morning and so far today. We are now about 1/2 way through the chemo injection. We will see if the Hulk shows up.
Morning bubbles with Daddy:
Playdough:
