The results have come in from sibling testing. It appears that one of Tara’s siblings is a match for her, so now they will be testing her sibling’s children for the remote possibility that one of Nadia’s cousins could provide a better partial match than the 5/6 cord blood we have on hold (very unlikely). With Tara’s family out of the country on holidays, they won’t be able to take blood samples until they return. This is pushing Nadia’s bone marrow transplant back until February. Of course, if Nadia’s health starts to decline suddenly then all timelines will move forward.
Which brings us to topic 2 of this post. A few days ago Nadia’s temperature was high and we ended up back at the hospital. They took bloods and everything was low. Her platelets were the lowest they ever have been. Fortunately, while we were waiting Nadia’s temperature came back down. After consulting with BC Children’s they let us come home. But now we have to be even more careful than usual. Mostly just watching TV and trying to stay in-active.
Nadia’s behaviour seems to be holding steady. Her nose is a bit more bloody than usual, but that is it really. She seems extra cuddly maybe 🙂
We will be getting bloods done again tomorrow. Hopefully we can stick to the February timeline, but we will do whatever is best for Nadia.
On a lighter note – some videos:
Here is Nadia’s Wickenheiser (sounding!) slapshot:
And Nadia politicking from a soapbox:
