Author Archives: Thor Bjarnason

What do you mean Day -17? Wasn’t yesterday -15??? Can’t you count? There was a bit of a mixup with one of the chemo drugs and they needed to order more. So our Day 0 has moved from Feb 21 … Continue reading →

Yesterday we had a bit of a lull in the morning and went for a brisk walk. It is cold (for Vancouver), but sunny! We then went back to Children’s to see Dermatology. Today was jam-packed. We only saw 3 … Continue reading →

Thank you everyone who came to the swab event yesterday. You really made a difference. Hopefully one of the people registered will be lucky, and be picked to be a hero for Sophie or Nadia or some other lucky person. … Continue reading →

After a relaxing morning we headed out to Tsawwassen centennial beach to go for a walk with some friends. There was some confusion and we both ended up at different beaches in different cities. Oops. Sorry! We met for some … Continue reading →

What a perfect day to drive from Kelowna to Vancouver. After 2 days of steady snow in Kelowna, and storms up in the mountain passes, and an alternate route just recently reopened from rock-slides, we had nothing but blue skies! … Continue reading →

Last week we had a conference call with Nadia’s Hemo team. The initial look at the blood work of the cousin’s does not look like they will be a better match than the cord blood we have on hold for … Continue reading →

Vancouver’s Coop Radio had us on to discus Nadia’s Swab event on their It Takes a Village program. Mary-Lynn from OneMatch.ca first describes Canadian Blood Service’s One Match program and blood donation. Thor follows up with Nadia’s Quest. The purpose … Continue reading →

The Metro has published an article on Nadia to help raise awareness of a bone marrow donor registry drive on Feb 2, from 1-5 pm at the Zavieh (Burrard & Nelson Street). The bone marrow registry drive is being held … Continue reading →

When Nadia was first diagnosed with bone marrow failure, there were many possible causes. Some more unlikely than others. Early on in the process the geneticists were considering Fanconi Anemia. It was a long shot because, besides bone marrow failure, … Continue reading →

The results have come in from sibling testing. It appears that one of Tara’s siblings is a match for her, so now they will be testing her sibling’s children for the remote possibility that one of Nadia’s cousins could provide … Continue reading →