The last two days Nadia has been getting 2 chemo drugs, fludarabine and cyclophosphamide. Cyclophosphamide might be the most potent of the chemo drugs. She got this drugs the past two days with the last dose today. One more day of fludarabine tomorrow and then Sunday will be a day of rest before day 0.
They took bloods overnight and found Nadia’s read blood count to be low, so she got another blood transfusion today (Thank you Donors!).
So far Nadia has been tolerating the chemo well, but we have been warned that the worst is yet to come. We move into isolation on Sunday in preparation for transplant the following day.
Right now it kind of feels like we are camping with a grumpy child. We are away from home and have all the logistics of camping (food, clothing, washing, etc). Our take on isolation is that it will be kind of the same, but stepped up a notch. It will be like camping with a sick, grumpy kid. And we have to turn into neurotic, germophobic, OCD, clean freaks. We will have to assume everything will be easily contaminated, if it touches the floor we have to kick it out of the room because it will be too dirty to touch and full of diseases trying to kill our daughter. We will have to wash for 1 min or longer, and put on a gown to be in the same room as Nadia. There are all sorts of rules about what Nadia is allowed to eat. She will not be able to leave. On top of this we will have to stay well. Any sign of sickness (even C-sores), we won’t be allowed in the room.
Should be fun.
On the plus side, the past 2 mornings have been pretty low-key and we have been near TVs most of the time. I had counted out Canada’s women’s team with 6 mins left and was pleasantly surprised. Daddy’s crush on Wickenheiser is moving towards Poulin. 🙂 What a nail biter! The Can-US men’s hockey was pretty good too – they were well matched teams.
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Daddy-daughter snuggle time
Nadia dipping chips into yogurt
Jelly getting her blood pressure checked (sorry this one is blurry, Nadia won’t stop moving)
The above picture reminds me of something. At first Nadia would freak out whenever a nurse needed to take blood pressure or temperature readings (which is pretty much all the time). She has got much better now. But, at the beginning she would cry and cower, and sometimes even offer up her teddy bears instead! How cruel!! 🙂
Nadia and mommy painting
Nadia shopping in the playroom
